I have a bit of an update. I am scheduled for a consult at UCSF next Monday. I’m glad to just have a date. I am completely nerding out about being sent to a facility that has modern technology: full access to my chart, all patient forms can be filled out online, I watch a 30 minute patient orientation video, and I have been sent probably over 200 pages of information to review before my appointment. I was also able to generate a list of questions for the doctor from another online app they referred me to. I have no doubt that the standard of care at UCSF is going to be beyond anything I’ve experienced so far.  Here’s hoping.

I plan to provide updates here from time to time and am still thinking about using Facebook groups to get info out to everyone (family and close friends).  Stay tuned as I work through all this…

Thanks to everyone for the overwhelming support so far.